Research priorities in pediatric palliative care: a Delphi study

…, S Cadell, B Davies, H Siden… - … of palliative care, 2008 - journals.sagepub.com
Background Pediatric palliative care is increasingly recognized to be a specialized type of
care requiring specific skills and knowledge, yet, as found in several countries, there is little …

[HTML][HTML] Improving the regulation of medical cannabis in Canada to better serve pediatric patients

…, AE Repetski, MJ Rieder, A Shackelford, H Siden… - CMAJ, 2021 - Can Med Assoc
CMAJ| October 18, 2021| Volume 193| Issue 41 E1597 health care providers from prescribing
cannabis and prevents cannabis extracts from being placed on provincial and territorial …

[PDF][PDF] Innovations in research with medically fragile populations: Using bulletin board focus groups

K Cook, S Jack, H Siden, L Thabane, G Browne - Innovations, 2014 - researchgate.net
A new group of medically fragile young adults are graduating from pediatric palliative care
programs with limited expectations to live beyond early adulthood, and no comparable adult …

[HTML][HTML] Charting the territory: end-of-life trajectories for children with complex neurological, metabolic, and chromosomal conditions

…, G Andrews, C Pawliuk, R Steele, HH Siden - Journal of Pain and …, 2021 - Elsevier
Context For parents, family, or clinicians of children with rare life-threatening conditions,
there is little information regarding likely symptoms, illness trajectory, and end-of-life care. …

Investing in uncertainty: young adults with life-limiting conditions achieving their developmental goals

KA Cook, SM Jack, H Siden, L Thabane… - Journal of Palliative …, 2016 - liebertpub.com
Background: With improvements in pediatric care and technology, more young adults (YAs)
with life-limiting conditions (LLCs) are surviving into adulthood. However, they have limited …

Optimising the process for conducting scoping reviews

…, MC Grégoire, R Steele, HH Siden - BMJ Evidence-Based …, 2021 - ebm.bmj.com
Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review
is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting …

[PDF][PDF] Ensuring equity and inclusion in virtual care best practices for diverse populations of youth with chronic pain

…, M Kirby-Allen, S Lambert, H Siden… - Healthcare Quarterly …, 2022 - researchgate.net
Poor access to care is a top patient-oriented research priority for youth with chronic pain in
Canada, and the COVID-19 pandemic has exacerbated these concerns. Our patientoriented …

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

…, S Cadell, B Davies, H Siden… - … journal of palliative …, 2008 - magonlinelibrary.com
The results from a pilot study are reported in this article, part two of a two-part paper. The
experiences of parents (six mothers and two fathers) are described as their families transitioned …

Scoping review of symptoms in children with rare, progressive, life-threatening disorders

…, MC Grégoire, R Steele, HH Siden - BMJ supportive & …, 2020 - spcare.bmj.com
Background Q3 conditions are progressive, metabolic, neurological or chromosomal childhood
conditions without a cure. Children with these conditions face an unknown lifespan as …

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey

C Pawliuk, S Cheng, A Zheng, HH Siden - Journal of Clinical Epidemiology, 2024 - Elsevier
Objectives Systematic reviews (SRs) are considered the gold standard of evidence, but many
published SRs are of poor quality. This study identifies how librarian involvement in SRs is …