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- Page navigation anchor for Tools to improve reporting of patient-oriented researchTools to improve reporting of patient-oriented research
Our collaborative research team commends CMAJ for launching the patient-oriented research collection in CMAJ Open.(1) Particularly, the specification for authors to report “how patients were engaged as part of the research team and how their contributions developed the work” is an opportunity to gather rich information about the role and function of patient partners.(1)
At the recent Knowledge Translation (KT) Canada 2018 Scientific Meeting (https://ktcanada.org/event/kt-canada-scientific-meeting-2018/), there was ample discussion about the lack of guidelines to report patient engagement in research. We believe research articles should consistently provide detailed, yet concise information about the engagement of patients in research projects. Indeed such information, when gathered by systematic reviews, could inform methodology for best practices of patient-oriented research.
An international effort has offered version two of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2) checklist to facilitate standardization for studies to report patient and public engagement in research in publications.(2) Recognizing low-quality reporting of patient engagement in research, our research team has also recently published a framework outlining the core components for describing the processes of patient engagement.(3) Our framework complements the GRIPP2 and provides addi...
Show MoreCompeting Interests: None declared. - Page navigation anchor for RE: A home for patient-oriented researchRE: A home for patient-oriented research
As a patient with Multiple Sclerosis, I have been registered with an accredited international MS Research panel at https://www.narcoms.org since pre-2010. I realize you are focusing on all of disabling conditions. Would you be able to connect to these researchers focused on what must be the huge amount of data they collected for years across North America on Multiple Sclerosis to add it to your collection that is likely building? Will your collection be the same as theirs, quarterly surveys? Hope so, that is very efficient as far as I as a patent understand
Competing Interests: None declared.